Well, a lot has happened since the last time I updated! It’s been a crazy few weeks! My mommy is always saying “If you want adventure, come be part of our life!!” It is quite the adventure!!!!
We have done a lot of traveling over the last month … and have another month of lots of travels ahead of us!!!
We have been traveling a lot to see Ms. Deb in Eureka. We are making great progress on my mouth and tongue movements. I’m taking water by mouth daily and managing it really well! In the last week I have begun to manage my coughs really well, managing being either swallowing or spitting it out, but little gagging and throwing up! Mommy and daddy are very pleased with how I am doing!
I started taking some food via my tube. Mommy and daddy decided they are going to start blending my foods. I told you (or maybe mommy did) that we got a really neat blender that will make my food so it can go through my tube! Be sure to check out mommy’s journal, I know she is talking about my food there! Anyway, mommy decided to start small and do baby food first!
I had a follow up MRI a few weeks ago, and then we got to meet with my new neurologist. He is very nice and is excited that I have very little spasticity in my arms and legs!! He told mom and dad that there was very little change in my brain this time, and that if there is change it is a loss of white matter. Mommy can explain better, I was doing too much giggling during our meeting and wasn’t paying much attention! The doctor wants to do some more tests to see if they can narrow down what might have happened to me!
My sissy’s are doing good! Grammie and Grampie have helped a lot this year! Grammie comes and stays with sissy’s while I travel with mom and dad! Sometimes sissy’s stay and Grammies house, they like that because they get to go ride in Grampie’s big truck! Auntie Nikki and Uncle Tim have been a great big help too! Last trip, Auntie Nikki took my sister’s to visit uncle Tim at the Fire Station and they got to sit in the fire truck and try lots of neat things! They told me all about it when we got home, I even got to try on Jaiden’s helmet! It was really special for them! Thank you for all your help over the last few months! I know my sissy’s love it!
We are headed to Portland this week! I have a sleep study to see how my breathing is when I’m in a deep sleep! Then I should be getting to pick up my new set of wheels! I hope to post pictures when daddy can help me! We might make a little mini family vacation out of it! If the weather is good maybe I can take my sissy’s to the zoo!! I am excited!!
After that we will head down to San Rafael to see Ms. Marcy. I think she is going to be so excited about what I’m doing! Then we will have 2 trips in May too! One to see Ms. Deb in Eureka again and then we get to go on a long trip because daddy starts his training with Ms. Anat!! We get to be down there for 10 days! I’m really excited!! It will be a fun adventure … I’m sure we will get to do some fun things together too!!!
I’m getting tired, so I am going to go play with my toys and sing with K-Love! Don’t forget to read mommy’s journal! Thank you for all your support and love!